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KMID : 0613620200400030351
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Health Social Welfare Review
2020 Volume.40 No. 3 p.351 ~ p.391
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A Qualitative Case Study on the Pediatric Palliative Psychosocial Support Program Experienced by Parents of Children Suffering from Life-Threatening Diseases
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Moon Yi-Ji
Um Myung-Yong
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Abstract
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The purpose of this study is to explore experiences of child patients and their parent(s) before and after their participation of pediatric palliative psychosocial support program. We used a qualitative case study design. Data were collected through in-depth interviews with 6 caregiving parents from October 2014 to June 2015. Qualitative analysis produced 24 semantic units, 8 subcategories, and 2 major categories. The first major category, ‘the experience of the treatment process’ includes: ‘discovery of disease and start of treatment’, ‘change in social relationships’, ‘distorted mind’, ‘exhaustion of mind, body, and economic resources’. The second major category, ‘the experience in the pediatric palliative psychosocial support program’, includes: ‘changed perception of treatment status’, ‘recovery of social relations’, ‘positive changes in patient emotions’, ‘changing in burnout experience’. In sum, it turned out that the pediatric palliative psychosocial support program alleviated the emotional, physical, and economical burden of caregivers of children who were in treatment for life-threatening diseases. Discussions and implications were provided based on these findings.
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KEYWORD
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Pediatric Palliative Program, Psychosocial Support, Life-Threatening Diseases, Caregivers’ Experience
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